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Rank: Advanced Member  Groups: Registered
Joined: 12/5/2009 Posts: 216 Location: Leicester, UK
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Oh, you don't appreciate what bliss it is to scratch your leg until you haven't been able to do it for 4.5 months 
The cast (from toes to under knee) finally came off yesterday and I felt really wobbly at first. I have to learn a new way of walking now. The foot has been re-built (they have the technology) and it is very tender, but nothing like as painful as it was before the op. If I'm very careful and take my time, I should be pain free in that foot by the time the bones have sorted themselves out.
Ain't it grand the things they can do for us these days  Years ago, we would be left at home, in pain, housebound and completely disabled.
I know some of you are going through a really rough time at the moment. But I have been there ... when the meds weren't working, or when I was waiting for them to work (and some of them take months before they have an effect). I even had to wait in pain for several months when the PCT were deciding whether I could have Retuximab. But now, the Rtx is working, my foot is mended and I can cope with the 'normal' pain I get from joints that have been damaged. So, my friends, don't despair - if your rheummy team are doing their job, you WILL get help and relief. But you have to communicate with them and build up a good relationship. I've been going to my rheummy team for 20 years now and (mostly) they care very much and always try to help when I tell them how much I am hurting.
Chin up and don't let 'Arthur' get you down.
Ann"I cannot do everything. I accept that. Not being able to do everything is no excuse for doing nothing." ~ Helen Keller
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 357
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Woohooo Ann! That's wonderful news, so pleased you're finally free of the cast, rub loads of vitamin e cream in to help the skin recover from all that time in the cast. Take things steady for a while, as I know from my foot surgery how easy it is to get caught out. HUGS Jo. 2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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Rank: Newbie
Groups: Registered
Joined: 6/11/2010
Posts: 2
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Hi, i am newly diagnosed it was good to read your post as im feeling a bit down. Feel a bit better now, reading your posting means that i realise that i have to give the drugs time to work!
Janet
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Ann,
That's great news that the cast is removed at last! And it's lovely to hear things are going so well with you.
I too had a great relationship with my rheumy consultant who I had known for 9 years but unfortunately in January he left suddenly without notice so now I have to start again with someone new when they eventually appoint a new consultant, we have no rheumy team at all at the moment!
Hope your foot is painfree very soon.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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 Wonderful news Ann not to much scratching mind! lovely to hear,take care ohh yes wobbles u will be at first. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Ann, FABULOUS NEWS!!! What you say is very true and very encouraging ... thank you! Enjoy your new found freedom, scratching to your heart's content Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Anne Good to hear from you, and that all is going so well now that the cast if off! Wishing you all the best Julia xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Ann
I was only thinking of you last night, and wondering how things were! I was about to send you a text! Now I know that your leg is yours once again, I hope it gets stronger and stronger.
Don't do too much belly dancing just yet!
Love Lyn
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009
Posts: 154
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Hi Ann
I'm so pleased to hear this news from you, having been in the same position myself can really relate to it. Doesnt the leg look strange after all these months, very wasted and not a little in need of a wax!
You are so right about going gently on it especially at first. I definitely overdid it and then had a very painful swollen leg which they thought was a DVT, but turned out to be a fractured tibia 6 weeks later. They said it was because the osteoporosis I have took a knocking and I hadnt paced myself enough. So do be kind to youself, tempting though it is.
So glad you have a great rheumy team, it does make all the difference.
Pamper that leg and yourself, you deserve it!
Take care,
Love Liz
xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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That`s great nesw Ann - being able to scratch it yourself surely beats using a knitting needle!! I`m so glad you have such a good rheumy team too, and thanks for your positive words. Take care, no running about after Trudy Scrumptious! Kathleen x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Great news Ann , i too have a good relationship with my rheumy team, can i ask you how many goes have you had of Rituximab now ? i only ask because im on my second treatment now ( 2 x infusion for each treatment for people who dont know this) , and was told by my consultant i can only have 5 goes of it, have you been told this too ? and how long did you get between each infusion, i had 8 months but it only lasted 7 really, Sophie x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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So pleased to hear your Good News. Be careful and don't go running around now that you can.  Nice and easy does it!!! Take Care Paula x x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Great new Ann - take it steady!
Julie xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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Lovely to hear your good news Ann Lots of love from Liz (and Sophie) xxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
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Brill news Ann- take it easy though!!
Maria x
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Rank: Advanced Member Groups: Registered
Joined: 12/5/2009 Posts: 216 Location: Leicester, UK
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 561
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Thanks Ann, i too am anaemic, this is the first biologic ive tried as i can not have the others due to my lupus, just been the hospital this morning and they put me back on Sulfasazaline as i can not tolerate Methotrexate so hopefully this will help, dont know if its everyone or just some people who can only have 5 goes of the Rituximab , consultant told me and my mum it wipes something out of the immune system( can not remember what )and you have to have a rest from it.
Sophie x
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